publishing personal accounts of illness and healing, fostering a humanistic practice of medicine, encouraging health care advocacy
publishing personal accounts of illness and healing, fostering the humanistic practice of medicine, encouraging health care advocacy

Sharing of giving and receiving health care

Casseroles and Conversations

2017 was a heartbreaking year for our family.
To start things off, my wife’s parents–both of them!–were diagnosed with terminal illnesses. We spent the next few months immersed in the painful, complex process of transitioning them to home hospice care and beginning to face and grieve the prospect of their deaths.
In the midst of this, Hurricane Harvey began heading towards Houston, our hometown. My wife, Marsha, drove to her parents’

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My Black Bag

Retirement means downsizing. “If a thing doesn’t give you joy, throw it away,” says the current mantra, as if it were that simple.
In my study closet, behind my obsolete Kodachrome lecture slides (about as necessary these days as a harpsichord), sits my little black bag. Does it give me joy? It’s much more complicated than that.
The bag holds all the medical instruments I carried through my training as a

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Finding the Words

“So how was your trip?” ask well-meaning friends and coworkers when I return from a medical mission to Engeye Health Clinic, in rural Uganda. Even years after my first trip there, trying to find the perfect words to describe it is a challenge.
I have been involved with Engeye since its founding, more than a decade ago. As the administrative coordinator with Albany Medical College’s department of family and community medicine,

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More Voices

Every month readers tell their stories — in 40 to 400 words — on a different healthcare theme.

More Voices: drinking
Drinking
More Voices: how can i help
How Can I Help?
More Voices: showing vulbernabilty
Showing Vulnerability

First Saturday Night at the Nursing Home

I stare at my chicken patty,
the limp lettuce, pale tomato
sliver, open the small
mayonnaise packet, even though
I don’t eat mayonnaise.
I pour my milk, set the carton
on the table, slide aside
the red Jell-O. If I don’t look
up, I won’t be where I am.
Father wears a blue dress shirt,
not his own, stares,
not speaking, not noticing
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Schrödinger’s Patient

In a box she waits,
Neither dead nor alive,
Until observed.
In three months,
The box opens.
Tested, probed, scanned,
She learns the cancer has recurred,
In which case she is dead.
Or it has not returned,
In which case she is–not alive.
Boxed in once more,
Neither dead nor alive,
She again awaits the allotted period
Until

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Learning to Live 8.5 Hours From My Autistic Daughter

The last time we talked
she said she wanted
every bone in her body
to break.
And so I picture her on a ledge
flirting with the idea of flying,
knowing she admires the flitting of butterflies
from one pollen hive to another
I watch her wings
open and close open and close
like they are breathing
like her wings are lungs
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encounters 20sept geneva

Encounters: “I have been so blessed…”

I had my first baby when I was thirteen, and my mother died when I was thirteen. I’ve been through a lot in my life, but when my faith is not consistent, that’s when I start getting all those crazy thoughts, like “Oh, my life, my life…”

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Felipe's Story

Felipe’s Story: “I’m going to the U.S. I’m going to see who detained the clouds and how they detained them.”

“There was a time [in Mexico] that it didn’t rain and there wasn’t a lot to eat in the country. There were no crops. People started to say that the Americans stopped the clouds so it wouldn’t rain, because they are very powerful. I said, I’m going to meet these Americans — I’m going to go to the U.S. I’m going to see who detained the clouds and how they detained

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Fatima's Story

Fatima’s Story: “I want them to be better than me. I’m here, stuck.”

“I tell [my children], you don’t have to do anything for me, just go to school and do what you have to do. On the weekend I take them to the mosque, because jeu can learn Arabic and all that. And I just want them to study. That’s all. That’s the main thing. If you want to be someone tomorrow, you have to work hard right now.

I want them to

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